Defining the Content for a New Quality of Life Questionnaire for Students with Low Vision (The Impact of Vision Impairment on Children: IVI_C)
The purpose of this study was to describe the impact of vision impairment on participation in everyday activities of school-aged children (8–18 years).
This study was based on focus groups and in-depth individual interviews with students with low vision, parents and teachers in Victoria, Australia.
An average of 146 statements per verbatim transcript were generated with the purpose of a pediatric vision-related quality of life instrument.
Areas likely to facilitate good participation in everyday activities were identified, accounted for 79% of the statements were class teacher knowledge and specialist support (40%) and social interaction (39%).
Student views focused on communication skills and orientation and mobility whereas the specialist instructors’ emphasis was on specialist support.
The benefit of including the perspectives of all stakeholders in questionnaire design based on the variation of themes across groups was highlighted.
The multi-perspective development strategy for a new questionnaire design has demonstrated the necessity to integrate different stakeholders’ perspectives.